Lili Reinhart has revealed that she has endometriosis — a disease where tissue grows outside the uterus’s lining and becomes inflamed — after undergoing laparoscopic surgery. On Thursday, the actress opened up about her journey to receiving a diagnosis on Instagram with a series of photos of her undergoing treatment.
In the caption, she wrote that she was diagnosed with interstitial cystitis, a chronic condition that causes bladder and pelvic pain, last year. “I was told there was no cure — and no lasting relief — for my symptoms,” Reinhart wrote, adding that she went to the hospital three times and had multiple visits with urologists and gynecologists to try and get answers. “And not one of them seriously considered endometriosis as the underlying cause of what I was experiencing,” she claimed.
Reinhart said that it wasn’t until she worked with two different pelvic floor therapists that endometriosis was even brought up as a possible explanation. “I pushed for an MRI on my own, which led to a diagnosis of adenomyosis,” she continued. “From there, I met with an endometriosis specialist who helped me decide that laparoscopic surgery was the next step I wanted to take — while, at the same time, another gynecologist told me I ‘probably didn’t have endo’ and should just go on the pill.”
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In an Instagram Story, she wrote more about her experience. “I still don’t understand how the 8-10 doctors I saw last year didn’t mention endometriosis while I was searching for answers,” she wrote, adding that her main goal was to preserve her fertility and lessen the severity of her symptoms.
Still, Reinhart says she’s “glad I trusted my body and listened to my gut and will continue advocating for others to do so.”
